Fall In Flight 🦋

As we look ahead into the final months of 2025, we are filled with hope and gratitude for everything this community has achieved and everything we’re building together to #ENDNF. We have had a very BUSY fall and are excited to share everything we have been working on. 

🦋Global NF1 Collaboration at Banbury

In October we were honored to sponsor the CABIN meeting “Cognition and Behavior in NF1” at the Banbury Center, held at Cold Spring Harbor Laboratory. Scientists, clinicians and advocates from around the world came together to explore cognition and behavior in NF, share data, and chart a path toward translational impact for children living with NF1. Collaboration across disciplines continues to underscore our belief: the biggest breakthroughs come when minds and hearts unite.

🦋 Chapter News

Our student-led grade school, high school and college chapters continue to soar—now over 100 strong nationwide! From “Play for Penny” sporting events to “Pumpkins for Penny” pop-ups, these inspiring young leaders are creating community, spreading awareness and raising funds. A huge thank-you to all the students and their supporting faculty to help make these events happen. 

Here are some recent chapter highlights:

🦋PFF Andover hosted a Parents Weekend Take Over with Varsity and JV Play for Penny’s and covered their campus with stickers and bracelets spreading wings, even with their crew team at the Head of The Charles regatta. .

🦋PFF Boston College hosted a Merch Sale and Jewelry by Lia during Parents Weekend.

🦋PFF Berkshire hosted a “Black Out” Penny Pop Up table during the Varsity Football game over parents weekend. 

🦋PFF St. Theresa’s hosted Positively Penny Pop Up at their Club Fair.

🦋PFF Stone Ridge School hosted Positively Penny Pop Up at their Club Fair.

🦋Congrats to PFF Friends Academy for launching The Butterfly Effect Club and hosting Pumpkins for Penny’s painting during their Fall Fair Weekend.

🦋PFF Miss Porter’s hosted a Pumpkin’s for Penny event during their Fall Weekend. 

🦋PFF Taft hosted a Positively Penny Pop Up at Parent’s Weekend.

🦋PFF Cold Spring Harbor High School hosted a Play for Penny Football and Positively Penny Pop Up this coming weekend.

🦋PFF Clemson hosted a Pastries for Penny.

🦋PFF Indiana University hosted  Halloween Candy Grams. 

🦋PFF Portledge The Butterfly Effect Club is hosting Pumpkins for Penny.

🦋PFF Deerfield is hosting Play for Penny during Choate Day on November 8th.

🦋 PFF on Charity Matters Podcast

Penny’s Flight was featured on the podcast Charity Matters where Kate shared Penny’s story and their inspiration to start Penny’s Flight Foundation. Take a listen and share to keep wings spreading.

LISTEN:

https://open.spotify.com/episode/4a9jNHRb2CMw4ikjnnweg5?si=Fj_O8VQ6TyK6gWibTsh5xA

READ:

https://charity-matters.com/2025/10/20/episode-94-pennys-flight/

🦋Caroline’s Cakes for a Cause- Penny’s Sprinkle Caramel Cake

We are thrilled that Caroline’s Cakes has created the Penny’s Flight Sprinkle Caramel Cake. Their beloved 7-layer Caramel Cake has a colorful twist in this special-edition Sprinkle Caramel Cake. They have generously agreed to donate 25% from the sale of this cake to PFF. This cake has arrived just in time for the holidays. PFF Sprinkle Caramel Cake

🦋Children’s Tumor Foundation (CTF) National Gala

In November, Chad and Kate are being honored with the Humanitarian Award at the Children’s Tumor Foundation National Gala in New York City. Our partnership with CTF is at the very heart of Penny’s Flight Foundation’s mission. Together, we are accelerating critical research, spreading awareness and bringing hope to NF warriors and their families. 

For more information about tickets or sponsorships, visit CTF.org.

👠Shoes in Flight - Manolo Blahnik Gives Back

On Wednesday, October 22nd, Amanda Ross, Mary Alice Stephenson, Jennifer Creel, Vanessa Halpert and Kate Doerge hosted Champagne and Shopping at the Manolo Blahnik store in NYC. 15% of the event proceeds will be donated back to Penny’s Flight Foundation.

Thank you for continuing to believe in our mission to #ENDNF.

🦋“It’s not your lifespan that matters—it’s your wingspan.”🦋