A member of the Penny’s Flight Foundation Medical Advisory Board, Dr. Yohay has specialized in the care of children and adults with neurofibromatosis (NF) since 2002. He first met Penny Doerge in 2009 when she was two and half years old and cared for her for the rest of her life...

Penny Doerge was born with a genetic condition called neurofibromatosis — but she is being remembered for shining a light of positivity into many lives, including those of Jenna Bush Hager’s daughters. Doerge’s parents open up about the foundation called Penny’s Flight that’s searching for a cure.

Bill Horan and Stacy Raine speak with Kate Doerge, our CEO, about Penny's life and the organization

After decades in marketing and communications and a new role as an operating partner at Traub, Kate Doerge never anticipated that she would also become a CEO. This new job, however, is the one her whole career has prepared her for and the one she was meant to do.

Christina Potter, far left, artist Anne Neilson, Kate Doerge and her son, Frankie Doerge, at Angels & Art For a Cause on April 19 at St. John’s in Lattingtown. The fundraiser supported Penny’s Flight, a foundation that raises awareness of neurofibromatosis, and helps fund research into a cure.

#VBGIVESBACK

When Kate Doerge lost her 16-year-old daughter Penny in November, no one would have blamed her if she sunk into an emotional abyss and burrowed herself away from the world.

My Daughter’s Life Span Was Short, but Her Wingspan Is Vast. How losing her child to terminal illness gave one woman unstoppable purpose.

By Kate Doerge (as told to Eleni N. Gage)

"It's not your lifespan, it's your wingspan": Girl with terminal illness inspires others

Jenna Bush Hager shares loss of young family friend for important reason

Medical issues never defined Penny Doerge’s short life