Partnerships
BX Gives Back
Pictured: Courtney Janssen (left) and John Gray (right)
Big News
We’re so proud to share that Penny’s Flight Foundation has been awarded a $125,000 general operating grant from the Blackstone Charitable Foundation as part of their global, employee-driven BX Gives Back Challenge!
This incredible gift, championed by the amazing Courtney Janssen, helps fuel our mission to raise awareness, fund critical research, and support families affected by Neurofibromatosis (NF).
With this contribution, we will continue to expand our impact, fund more NF research, and shine Penny’s light far and wide.
Thank you, Blackstone Charitable Foundation, for helping us soar—and for believing in a future where we will #endnf.
“We are thrilled about the partnership between Penny’s Flight and CSHL and could not ask for a better partner in the quest to find a cure for neurofibromatosis,” says Chad Doerge, who co-founded Penny’s Flight with his wife, Kate Doerge, in honor of their late daughter. “CSHL is a beacon of innovation in medical research. As they set their vision on the complex problems presented by NF, we know the resulting science will promise a brighter future for those affected by the disease.”
As part of our VB Gives Back partnership, a portion of each and every veronicabeard.com order through the end of June will benefit Penny’s Flight Foundation. And to kick off the partnership, they’re donating $50 from each Penny loafer sold in April 2024.
The Penny Doerge Adaptive Academy (PDAA), a program offered at the Lerner Children’s Pavilion, the children’s hospital at HSS, organizes local and regional adaptive programs to offer pediatric patients with challenging musculoskeletal conditions the opportunity to participate in active
adventures. The PDAA was first piloted in 2014 with a single ski trip that served 10 children in the hopes that it would help them cope with their limitations outside the hospital walls.
It Takes One Boat To Be Courageous.
Oarsome Expedition will use the sport of Ocean Rowing and attempt to row around the world within 2 1/2 years. We will be rowing for our Veterans and their K9 service dogs, those families living with Neurofibromatosis (NF), and those struggling with eating disorders.