LIVE UNTIL JULY 31, 2025
$100K DONOR MATCH
An incredible donor has stepped forward with a $100,000 match opportunity for Penny's Flight Foundation! We could not be more grateful.
Every dollar that is pledged UNTIL JULY 31, 2025 will be doubled to fuel critical NF research and keep our mission to #ENDNF moving forward.
With $25 million in NF funding cut from the 2025 Congressionally Directed Medical Research Program (CDMRP) the timing has never been more critical!
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CRIQUET PFF Golf Shirt
Regular price $100.00 USDRegular priceUnit price per -
Roller Rabbit Flutter Polo Pajamas
Regular price $138.00 USDRegular priceUnit price per -
Penny's Original Artwork - SIC Water Bottle (with straw)
Regular price $50.00 USDRegular priceUnit price per -
Penny's Original Artwork - 20 oz Seriously Ice Cold Cup
Regular price $40.00 USDRegular priceUnit price per -
Penny's Original Artwork - 30 oz Seriously Ice Cold Cup
Regular price $50.00 USDRegular priceUnit price per -
PFF LL Bean Tote
Regular price $100.00 USDRegular priceUnit price per
Partnership Spotlight
BIG NEWS
We’re so proud to share that Penny’s Flight Foundation has been awarded a $125,000 general operating grant from the Blackstone Charitable Foundation as part of their global, employee-driven BX Gives Back Challenge!
This incredible gift, championed by the amazing Courtney Janssen, helps fuel our mission to raise awareness, fund critical research, and support families affected by Neurofibromatosis (NF).
With this contribution, we will continue to expand our impact, fund more NF research, and shine Penny’s light far and wide.
Thank you, Blackstone Charitable Foundation, for helping us soar—and for believing in a future where we will #endnf.
The Butterfly Effect
Discover how our impactful mission drives positive change for NF. Experience the ripple effects of our actions with the butterfly effect.
About Penny
Penelope Griggs Doerge (June 29, 2006 - November 10, 2022) was a talented artist, fashionista, world traveler, social media influencer and the founder of “Glam Camp”, a summer program for young girls. In just 16 years, she lived a life full of purpose, passion and joy, and through her actions showed countless others how to live with grace.
Penny was a model of resilience, positivity and courage. Diagnosed with neurofibromatosis (NF1) as an infant, Penny never let this define her or hold her back. She lived her life “Walking on Sunshine”, in the words of her favorite song. Penny made an impact everywhere she went by shining her bright light. She was an inspiration and a teacher to people of all ages.
Penny is the daughter of Chad and Kate Doerge who created the Penny’s Flight Foundation shortly after Penny’s death in November 2022. The Foundation was created to advance medical research in NF1 and its related disorders, and to inspire others to live with positivity and humor and find the beauty and joy in all situations.
The Penny Doerge Adaptive Academy at HSS
The Penny Doerge Adaptive Academy (PDAA) at Hospital for Special Surgery organizes local, regional and national adaptive programs for kids and teens facing a range of disabilities. These events help patients realize new skills and interests, reinforce therapy goals and allow patients to socialize with other patients. Examples of past PDAA events include skiing, surfing and indoor rock climbing. These experiences encourage mobility and independence and often result in increased self-esteem, self-confidence and motivation to live fuller, more active lives, just like Penny did.
Blog posts
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Research and Current News on NF1 - Penny Inspir...
Penny’s Legacy Inspires Breakthrough NF1 and Brain Tumor Research At Cold Spring Harbor Laboratory, groundbreaking research funded by Penny’s Flight and the Robert I. Schattner Foundation is shedding new light...
Research and Current News on NF1 - Penny Inspir...
Penny’s Legacy Inspires Breakthrough NF1 and Brain Tumor Research At Cold Spring Harbor Laboratory, groundbreaking research funded by Penny’s Flight and the Robert I. Schattner Foundation is shedding new light...
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