The butterfly effect is a phenomenon in which a tiny event, like the flap of a butterfly’s wings, can result in a profound and far-reaching shift of circumstance. 

Through Penny’s story and bright light, the Penny's Flight Foundation aims to expand knowledge around NF, while inspiring others to find beauty in imperfection, positivity in the face of challenge, and faith over fear. Read more about What We Fund.

Penelope Griggs Doerge (June 29, 2006 - November 10, 2022) was a talented artist, fashionista, world traveler, social media influencer and the founder of “Glam Camp”, a summer program for young girls. In just 16 years, she lived a life full of purpose, passion and joy, and through her actions showed countless others how to live with grace.

Penny was a model of resilience, positivity and courage. Diagnosed with neurofibromatosis (NF1) as an infant, Penny never let this define her or hold her back. She lived her life “Walking on Sunshine”, in the words of her favorite song. Penny made an impact everywhere she went by shining her bright light. She was an inspiration and a teacher to people of all ages.

Penny is the daughter of Chad and Kate Doerge who created the Penny’s Flight Foundation shortly after Penny’s death in November 2022.  The Foundation was created to advance medical research in NF1 and its related disorders, and to inspire others to live with positivity and humor and find the beauty and joy in all situations.