Our Mission

The butterfly effect is a phenomenon in which a tiny event, like the flap of a butterfly’s wings, can result in a profound and far-reaching shift of circumstance. 

Penny’s Flight Foundation was launched in celebration of the extraordinary life of Penny Doerge and the qualities that she personified — joy, artistic expression and humor — while bravely living with Neurofibromatosis (NF) since infancy. 

The Foundation’s mission is to make much-needed advances in medical research on Neurofibromatosis and related disorders — with a lasting impact on altering the course of this disease. There is no cure for NF and research around the disease remains underfunded, despite being one of the most common genetic disorders in the United States. 

Through Penny’s story and bright light, the Foundation aims to expand knowledge around NF, while inspiring others to find beauty in imperfection, positivity in the face of challenge, and faith over fear.

Learn More About Our Mission