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Upcoming Projects
We could not be more grateful to our generous sponsors, donors, and ALL of you who have supported us in our mission to #ENDNF. Your funding will continue to support the critical research needed in the NF field and enable upcoming projects including…
Penny's Flight-sponsored Banbury Meeting at Cold Spring Harbor Laboratory: during October, thirty of the top global experts in NF will convene for three days of think tank-style meetings around NF-related cognitive deficiencies
New grants for NF research that targets NF1 protein correction through upregulation of the "good" NF gene copy. This approach has the benefit of targeting the root cause of all NF-related symptoms, potentially stopping the progression of the disease, with less near-term delivery hurdles than gene therapy.Â
Continued support for NF research at Children’s Tumor FoundationÂ
Further growth and support of the Penny Doerge Adaptive Academy (PDAA) at Hospital for Special Surgery
Spreading NF awareness more broadly by supporting the continued expansion of the Penny’s Flight Chapter network at schools across the country
We remain committed, grateful and excited about the growth of Penny’s Flight Foundation and our mission to #ENDNF.Â